What do you do when you don't know what to do?
Things have been a little crazy around here lately. Lately, it seems like it is always a little crazy around here. Still, it has been a little MORE crazy than usual within the last couple of weeks. Truth is, I haven't been feeling well for some time now - I mean, I'm talking months. My symptoms are identical to a situation I had three years ago, when I had surgery to have a very large stone removed from my bladder. At the time, my urologist said that it was the largest stone he had ever seen in over 20 years as a urologist (hey - I win!). The stone was removed, but since I didn't really care for the doctor, I didn't do the follow-up to see what caused the stone or what treatments might be needed to prevent the same from happening again.
Fast forward to the present day. Back in January, I knew that I wasn't feeling well, but since my symptoms were identical to the last stone, I knew what I was in for, and I could tolerate being uncomfortable for a little while - and I didn't really fancy going back to the urologist, I suffered quietly, as best I could. Besides, I didn't want to miss my trip to Texas or the spring travel season for work while I was recuperating from surgery. In retrospect, and in no small part based on how I feel right now, I do realize that was utterly stupid.
When I got back to Florida after spring travel, I started to see a doctor and get the wheels in motion to get this stone out of me. Unfortunately, I learned that doctors are not really willing to rely on my own diagnosis and just schedule me for a surgery requiring multiple incisions. Instead, I have endured a battery of tests - the result of which is that they have found a mass in my bladder that is about 6.5 cm. Confident that this is the stone to which I referred, I again requested that they slice me open and remove the stone so that I could get on with the business of enojoying my summer. My new urologist, before slicing, insisted on doing a cystoscopy (a procedure that no man should ever volunteer for!) and getting a "look" at the mass.
Upon viewing this mass, the doctor informed me, in no uncertain terms, that I have some form of bladder cancer. Knowing that this is almost impossible, I informed the doctor that he was clearly incorrect - merely viewing my (abnormally large sized) stone as something else. Again, he questioned my ability to self-diagnose. To that end, he claimed to be confident that this is not a stone, but rather some form of cancer.
As a 35 year-old, non-smoker who is not exposed to industrial chemicals, it wouldn't seem as though I am in any of the risk categories for this type of cancer. But, the urologist doesn't see it that way. This means that I have to go in for another scope tomorrow (Thursday) to find out exactly what is going on in my bladder. I estimate the urologist's chances of being right at about 30%. However, since hearing this news about 10 days ago - I have been a little freaked out. OK...I started out a LOT freaked out, but I am much better now.
Up until now, this blog has been at least semi-anonymous. I really couldn't figure out how to tell all of the people that I thought should know, so I went for the completely impersonal approach. I deal with talking about myself best that way. I also did some inner battle with whether or not to say anything until I knew something more concrete. So - I almost wussed out on saying anything until hours before I am supposed to go in for surgery. Nothing like pulling the pin out of the grenade, tossing it in the room and then taking off running.
Let me be clear about a few things - in the last week and change, I have done a lot of reading about cancer - this cancer (that I may or may not have), specifically. I have learned even in the worst case scenario, this is not a death sentence. That's the good news; the bad news is that there is a serious likelihood of recurrence somewhere down the road. While death is not likely, some of the things that I may have to live with aren't all that appealing, either. For instance, at 35, I am not sure that I am looking forward to a lifetime of "touching, holding, cuddling, and caressing." I am pretty sure that I will not take the news very well if I am told than I need a radical cystectomy. The thought of having to drain my fake bladder every few hours manually is more than I can stand to think about. I have mentioned that I really do still think that this is just a stone, right?
I have contacted some of my favorite bloggers and asked them to post about the personal finance angle of learning potentially life-altering news. JD from Get Rich Slowly is going to feature this story on his blog in the next day or so, and hopefully, there will be a number of people who can offer up some advice - because I admit to being baffled with a lot of this stuff. And, as independent a guy as I am, going through this alone has me just a touch petrified. Hopefully, other bloggers will pick up on the discussion, as I feel this topic (personal finance as related to possible health issues) is somewhat underrepresented. I will post a follow-up as soon as I can.
Also, I ask that you try to take just a few things away from this post. The first is that I am not looking for sympathy (heck, I don't even think the cancer diagnosis is true yet!), and, even if it is true, I don't think I am going to die. I am not looking for an outpouring of support and prayer (though, I am not going to kick anyone away with a better pipeline to the "Big Guy" than myself). I am fortunate that I have decent health insurance and more sick leave than I ever thought I could use. I hope that any friend of mine who reads this takes away the idea that if your body is telling you something is wrong - and you know it - go to the doctor, go directly to the doctor, do not pass 'Go!', do not collect $200. I know that I have learned my lesson with my own version of "Scared Straight!"
This might be a good time for me to make a sales pitch for you to sign up for the email updates using the block to the upper-right. You won't get spam - and lord knows I don't post all that frequently, but you will get an ad-free, black-on-white, basic formatted HTML version of any updates from this blog only (your name won't be sold or used for any other unsavory things).
This story is updated here.